Privacy Policy

How We Collect and Use Information

We collect the following types of information about you:
Information you provide us directly:

We may ask for certain information such as your name, address, phone number and e-mail address when you access information on our website or if you correspond with us. We may also retain any messages you send and may collect information you provide in your contact material. We may use this information to operate, maintain, and provide to you the features and functionality of the website.  Your name and other details you provide may be published publicly. Once published your name may not be able to be removed.

Analytics information:

We may directly collect analytics data, or use third-party analytics tools and services, to help us measure traffic and usage trends for the website. These tools collect information sent by your browser including the pages you visit and other information that assists us in improving the website. We may collect and use this analytics information in aggregate form such that it cannot reasonably be manipulated to identify any particular individual user.

Cookies information:

When you visit the website, we may send one or more cookies — a small text file containing a string of alphanumeric characters — to your computer that uniquely identifies your browser and lets us help you log in faster and enhance your navigation through the site. A cookie may also convey information to us about how you use the website (e.g., the pages you view, the links you click and other actions you take on the website), and allow us to track your usage of the website over time. A persistent cookie remains on your hard drive after you close your browser. Persistent cookies may be used by your browser on subsequent visits to the site. Persistent cookies can be removed by following your web browser’s directions. A session cookie is temporary and disappears after you close your browser. You can reset your web browser to refuse all cookies or to indicate when a cookie is being sent. However, some features of the website may not function properly if the ability to accept cookies is disabled.

Log file information:

Log file information is automatically reported by your browser each time you access the website. When you use our website, our server may record certain log file information. These logs may include anonymous information such as your web request, Internet Protocol (“IP”) address, browser type, referring / exit pages and URLs, number of clicks and how you interact with links on the website, landing pages, pages viewed, and other such information.

Clear gifs/web beacons information:

When you use the website, we may employ clear gifs (also known as web beacons) which are used to anonymously track the online usage patterns. In addition, we may also use clear gifs in HTML-based emails that we send to our database to track which emails are opened and which links are clicked by recipients. The information allows for more accurate reporting and improvement of the website and our other resources.

Device identifiers:

When you access the website by or through a mobile device (including but not limited to smart-phones or tablets), we may access, collect, monitor and/or remotely store one or more “device identifiers,” such as a universally unique identifier (“UUID”). Device identifiers are small data files or similar data structures stored on or associated with your mobile device, which uniquely identify your mobile device. A device identifier may be data stored in connection with the device hardware, data stored in connection with the device’s operating system or other software, or data sent to the device by us. A device identifier may convey information to us about how you browse and use the website. A device identifier may remain persistently on your device, to help you log in faster and enhance your navigation through the website. Some features of the website may not function properly if use or availability of device identifiers is impaired or disabled.

Location data:

When you access the website by or through a mobile device, we may access, collect, monitor and/or remotely store “location data,” which may include GPS coordinates (e.g. latitude and/or longitude) or similar information regarding the location of your mobile device. Location data may convey to us information about how you browse and use the website.

Commercial and marketing communications:

We may use the information we collect or receive, such as your email address, to communicate directly with you. We may send you emails containing newsletters, promotions, and special offers.

Use of certain service type information we collect about you:

We use or may use cookies, log file, device identifiers, location data and clear gifs information to: (a) remember information so that you will not have to re-enter it during your visit or the next time you visit the site; (b) provide custom, personalized content and information; (c) to provide and monitor the effectiveness of our website; (d) monitor aggregate metrics such as total number of visitors, traffic, and demographic patterns; (e) diagnose or fix technology problems;

Sharing of Your Information:

We will not rent or sell your information to third parties without your consent, except as noted below:

Instances where we are required to share your information:

We will disclose your information where required to do so by law or subpoena or if we reasonably believe that such action is necessary to (a) comply with the law and the reasonable requests of law enforcement; (b) to enforce our Terms of Use or to protect the security, quality or integrity of our website; and/or (c) to exercise or protect our rights, property, or personal safety.

Sharing certain service type information we collect about you:

We may share certain service type information, including information obtained through tools such as cookies, log files, device identifiers, location data and clear gifs (such as anonymous usage data, referring/exit pages and URLs, platform types, number of clicks, etc.

How We Store and Protect Your Information

Storage and Processing:

Your information collected through the website may be stored and processed in the United States or any other country.

Keeping your information safe:

We care about the security of your information, and uses commercially reasonable safeguards to preserve the integrity and security of all information collected through the website.

Compromise of information:

In the event that any information under our control is compromised as a result of a breach of security, we will take reasonable steps to investigate the situation and where appropriate, notify those individuals whose information may have been compromised and take other steps, in accordance with any applicable laws and regulations.

Links to Other Websites and Services

We are not responsible for the practices employed by websites or services linked to or from the website, including the information or content contained therein. Please remember that when you use a link to go from the website to another website, our Privacy Policy does not apply to third-party websites or services. Your browsing and interaction on any third-party website or service, including those that have a link on our website, are subject to that third party’s own rules and policies. If you are using a third-party website or service (like Facebook, Google groups, or an chatroom) and you allow such a third-party access to you User Content you do so at your own risk.


Privacy Policy Statement for SMS/MMS Communication

The Institute for Myeloma & Bone Cancer Research (IMBCR) is committed to protecting the privacy and confidentiality of the personal information of our recipients. This Privacy Policy is designed to inform you about the collection, use, and disclosure of your personal information when you agree to receive SMS/MMS communications from IMBCR.

1. Information We Collect: We may collect and store information provided by you, including but not limited to your name, contact number, and any other details necessary for communication and appointment reminders.

2. Purpose of Collection: The information collected is solely for the purpose of sending SMS/MMS communications related to updates, reminders, and information from IMBCR. We do not share, sell, or disclose your information to third parties for marketing purposes.

3. Consent to Receive SMS/MMS: By agreeing to receive SMS/MMS communications from IMBCR, you acknowledge that you have read and understood this Privacy Policy. Your consent allows us to send you essential updates and information related to our services.

4. Opt-out Option: You have the right to opt-out of receiving SMS/MMS communications from IMBCR at any time. To unsubscribe, reply ‘STOP’ to any message, and your number will be removed from our messaging list.

5. Data Security: We employ industry-standard security measures to protect your personal information from unauthorized access, disclosure, alteration, and destruction.

6. Compliance with Legal Requirements: IMBCR will comply with all legal requirements regarding the protection of your personal information and will cooperate with lawful requests.

7. Changes to Privacy Policy: IMBCR reserves the right to update this Privacy Policy periodically. Any changes will be communicated through our official channels.

8. Contact Information: If you have any questions, concerns, or requests regarding your personal information or this Privacy Policy, please contact us at [].

By agreeing to receive SMS/MMS communications from IMBCR, you signify your understanding and acceptance of the terms outlined in this Privacy Policy.